Are the steroids working? The CCAM didn't get bigger, but it didn't get smaller either. Right now, it's holding steady. The steroids will continue to work for the next two weeks so we're hoping this is a sign that they are trying to do their job, but just need some more time to work. (The last shot was given on Wednesday.) We're praying that the mass has plateaued and is going to decrease.
The current size of the CCAM is on the border of being very severe. In other cases, with a CCAM this size or larger there is a higher chance of the developing hydrops (fluid around other organs). Most often this is a sign that the heart is in distress. This would not only be dangerous for the baby, but also starts becoming dangerous for me. In some cases, the mother's body starts to mirror the babies and develops fluid as well. They want to monitor us both closely so we'll be in for ultrasounds twice a week until the CCAM decreases out of the danger zone.
The MRI results were also discussed. They confirmed the doctor's diagnosis that it is a CCAM. The only "new" information was that the size of both lungs are very small. (Not a big surprise.) We really need the mass to go down so the lungs have room to grow before she makes her big entrance into this world.
We discussed so many "what ifs" today with the doctor. The range of what could happen is gigantic. It's hard, but the only thing we can do is wait. We're 22 weeks along. In other cases, the CCAM starts to decrease on it's own around 26-28 weeks.
So now we just wait...and pray.
Our next appointments are on Wednesday. Until then, thanks again for reading and keeping us in your thoughts and prayers.
S & S
Hey, thinking of you today! I hope your appointments go well and we're excited to see you this weekend :)
ReplyDeleteGood Luck today, we are praying that you get good news. Jessie and John
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